In the afternoon, I met Aunty Rukiah who is among the first people who follow my blog/page. She came down to KL from Penang attended a conference and wanted to see me. Today another tv interview.
Yesterday and today I woke up as early as 5am to get myself ready for a television interview on talkshow about my life battling with Muscular Dystrophy. My uncle and my aunty took me to the TV station and in the way we took Razleena, a friend of mine who is also the campaign manager for my project.
Razleena was talking about the public awareness campaign that we are organising. Our first project is to raise fund through a photoshoot project called 1000 Faces: Strike A Pose in Defying Muscular Dystrophy to search for 1000 faces for our photo collage and I was talking about my personal experiences battling with the disease.
Today, I was again invited to the tv station to join Francissca Peter on the talkshow and I talked about the campaign, public perception regarding Muscular Dystrophy and how different-abled people like me live.
After i set up my Facebook page about living and dying with Muscular Dystrophy on facebbook page entitled Fazz Fadhilah vs Muscular Dystrophy, I felt the urge to organise a public awareness campaign on Muscular Dystrophy de to the lack of awareness among Malaysians.
I started to write emails and messages to some of the local celebrities including Malaysian Queen of Fundraising and a famous singer Francissca Peter who responded to my message on her Facebook.
We communicated through facebook and we met for a meeting. During the meeting I told her about my disease and I was surprised that she was well versed about my disease. I am sure she has done her research before she met me.
Fran agreed to help me for my awareness campaign and agreed to be the spoke person for my campaign. I was touched by her kindness and willingness to help me on my campaign.
We need to work hard and more aggresive for our media campaign to gain slot in the mainstream media to educate and advocate the public on Muscular Distrophy exclusively and other issues related to different-abled people.
From the meeting with Fran, Bibiana, Razleena, Aunty Rukiah and Yanti, I gained so much input with what to do my life and fill it with more positive opportunities to come. They gave me insight on brighter 2012 which is coming in a week time. Thank you all for your love and support.
